Praying with Lior

I've heard good things about a new documentary film, Praying with Lior, only opening now in a few cities and playing primarily at Jewish film festivals. From the film's website:

An engrossing, wrenching and tender documentary film, Praying with Lior introduces Lior Liebling, also called "the little rebbe." Lior has Down syndrome, and has spent his entire life praying with utter abandon. Is he a "spiritual genius" as many around him say? Or simply the vessel that contains everyone’s unfulfilled wishes and expectations? Lior – whose name means "my light" — lost his mother at age six, and her words and spirit hover over the film. While everyone agrees Lior is closer to God, he’s also a burden, a best friend, an inspiration, and an embarrassment, depending on which family member is speaking. As Lior approaches Bar Mitzvah, the Jewish coming-of-age ceremony different characters provides a window into life spent "praying with Lior." The movie poses difficult questions such as what is "disability" and who really talks to God? Told with intimacy and humor, Praying with Lior is a family story, a triumph story, a grief story, a divinely-inspired story.

It sounds like this could go either way, right? The stereotyping of a child with Down syndrome as closer to God than the rest of us, an inspiration or a burden are themes on developmental disability we've heard many times before.

But filmmaker Ilana Trachtman's motivations as reported by Devorah Shubowitz at Media Rights reveal complexities behind the intent of the documentary:

As Trachtman struggled to focus during a Rosh Hashanah service at Elat Chayyim, a multi-denominational Jewish retreat center in the Catskills, she was mesmerized by the soulfully attentive off-key voice that came from behind her. When she saw the source, a boy with Down syndrome, she was shocked. Lior's praying shattered her expectations of what people with disabilities can do. "He amazed me. He could do something that I can't do -- pray with real concentration in Hebrew and in English. So I stalked him because of my own spiritual curiosity." When Trachtman heard Lior was going to have a Bar Mitzvah, she thought somebody should tell his story on film and shortly after, she decided to be that person....

Audiences may debate whether this photogenic young person's "star quality" sets him apart from other people with disabilities. Some may argue that Lior's integration is dependent upon his recognition by and attractiveness to non-disabled society. Others may think his charisma is connected to his disability. The film certainly brings to the foreground issues of the aesthetics of disability, and non-disability, in film.

Another review at Cinematical also suggests that disability is just one (important) facet of this complex family story about love and religious faith.

Cross-posted at Alas, A Blog

Update: Casting director fired from "Shelter" flick

According to the AP:

A casting director for the horror thriller "Shelter" has been fired after West Virginia Gov. Joe Manchin's office objected to what it termed an insensitive casting call for extras with unusual features that might look inbred.

Donna Belajac Casting's Web site initially advertised the scene as being set in a "West Virginia 'holler,"' but producers Emilio Diez Barroso and Darlene Caamano Loquet said the movie is not set in West Virginia and the state will not even be mentioned.

"On behalf of the entire SHELTER production we regret and are deeply sorry for the very insensitive casting call sent out without our knowledge by our casting director Donna Belajac who has been dismissed from this project as a result," Barroso and Loquet said in a statement issued Tuesday night.

I don't care one way or another about Belajac's firing. It's not a victory for disability awareness if all the brouhaha was because it was offensive to suggest people of a geographical region all look abnormal or disabled. It was the association with abnormality everyone was upset about, not any assumptions about the worth of people who aren't picture perfect.

The movie studio will hire someone careful to not attribute the abnormal "inbred" look of its scary characters to a particular place, and we're all supposed to be placated by that. Rest easy. Be assured that the scary folk in the movie are not "us" and we are not "them."

See previous post here.

Pedro Guzman sues government

From the AP story:

"I will never forget what Peter looked like when he finally returned to the U.S. — exhausted and in terrible shape," said Guzman's brother, Michael. "Peter's life is forever changed by what his government did to him."

His lawsuit, which seeks unspecified damages, was filed in federal court in Los Angeles by the American Civil Liberties Union on behalf of Guzman.

"Not only does Peter and his mother want some vindication, they want to make sure immigration officials understand they can't do this," said attorney Jim Brosnahan, who represents Guzman. "They should have apologized and said they would take steps to make sure this doesn't happen again."

A statement released by Immigration and Customs Enforcement, a branch of Homeland Security, called the incident a "one-of-a-kind case" and added more than 1 million illegal immigrants have been deported since the agency's inception.

See other posts on Guzman here and here.

Cross-posted at Alas, A Blog

Latimer paroled

Through the appeals process, the decision to deny Robert Latimer parole has been overturned:

After seven years in prison for killing his severely disabled daughter, Robert Latimer will be freed on day parole this week.

The appeal division of the National Parole Board this afternoon overturned a parole board decision last December that rejected Mr. Latimer's bid for parole.

The appeal division, following a month-long review, concluded Mr. Latimer does not in fact pose an undue risk to reoffend.

....

In its decision in December, a three-member panel of the parole board concluded: “You could not or would not describe the feelings or thoughts underlying your actions at the time of the offence.... You appear satisfied with the position that you and only you were able to determine her life or death, describing such decisions as beyond the law.”

The appeal division, however, found that although Mr. Latimer was at times unfocussed, he was not unwilling to answer their questions.

“The Appeal Division finds that the Board's determinations in this regard are unreasonable and unsupported. Your responses at the hearing reveal that you did in fact demonstrate insight and were able to explain why you decided to end the life of your daughter.

The appeal division has applied two conditions to his parole: Mr. Latimer cannot have responsibility for, or make decisions for, any individuals who are severely disabled.

See previous post on Latimer here.

Cross-posted at Alas, A Blog

Hollywood casting call for that "inbred" look

From the Pittsburgh Tribune-Review (bolded italics are mine):

The announcement -- which was sent out in a news release and posted on the casting company's Web site -- asked for people with the following attributes:

"Extraordinarily tall or short. Unusual body shapes, even physical abnormalities as long as there is normal mobility. Unusual facial features, especially eyes."

The announcement requests "a 9-12-year-old Caucasian girl with an other-worldly look to her."

"Could be an albino or something along those lines -- she's someone who is visually different and therefore has a closer contact to the gods and to magic. 'Regular-looking' children should not attend this open call.'"

Asked if she felt the characterization might be offensive to West Virginians, [Donna] Belajac [of Donna Belajac Casting] said: "We tried to word it in a way that's not offensive. I hope it's not an offensive thing. It's not meant to be a generalization about everyone in West Virginia. That's why we put that it's in a 'holler' in the mountains."

....

"It's the way it was described in the script," Belajac said Monday. "Some of these 'holler' people -- because they are insular and clannish, and they don't leave their area -- there is literally inbreeding, and the people there often have a different kind of look. That's what we're trying to get."

Belajac said the announcement was not meant to stereotype people from West Virginia. But state officials and a history professor called it "unfortunate" that such unfair views of people are being repeated.

"They clearly are not trying to create the image of a quaint, homespun mountain family," said Kevin Barksdale, assistant history professor at Marshall University in Huntington, W.Va. "Clearly, what they're trying to establish is this notion of the hillbilly monster."

The above casting call is for an upcoming horror film called "Shelter" starring Julianne Moore.

The following one is for a movie version of Cormac McCarthy's The Road starring (ATTN: Brownfemipower!) Viggo Mortensen and Charlize Theron:

It's set in a post-cataclysmic America. The few survivors who were not seared by an unspecified fiery disaster are divided into two classes -- barbaric cannibals or their prey.

Men and woman ages 18 to 50 are needed for eight speaking roles and 30 extras.

Producers are looking for people with minimal muscle tone, long stringy hair and a starved, ravaged appearance. They need men capable of growing a full beard.

Also needed: a thin man of any ethnicity who is missing one or both legs. No previous acting experience is needed for this role.

I have a deep, unnatural love for post-apocalyptic fiction, and I recently read McCarthy's Pulitzer-prize-winning novel and found it as riveting as anything I've ever read. I think McCarthy is the great American author living today, and at least one character in another novel of his has had provoking things to say about disability/deformity. (That excerpt from All The Pretty Horses was one of my 2006 blog posts.)

Regarding these casting calls for the unusual, extraordinary, irregular and inbred, I certainly don't have any problem with disabled actors being part of Hollywood. Bring them on, please. But give them roles with humanity and lives beyond their physical attributes.

The movie "Shelter" is clearly working on the theory that physical oddballs and country hicks are effective monsters that provoke horror for their film. When will we get over this? When will the insult of collecting unusual-looking people be seen as complicated and problematic in and of itself and not just because it might suggest insulting things about a geographical region or particular tribe of people?

Notice also, the odder the better, so long as you have no trouble with mobility. That's pretty specific. What's that about? My guess is they've fine-tuned their idea of the grotesque to mean physically strange, but they don't want any mobility aids distracting from the impact of that strangeness. Or maybe they need creepy people capable of chasing the star?

Thanks to Grace for providing the link to the news article.

It's an honor. . .

Over at A Creative Revolution, The Gimp Parade has been nominated for a Canadian F-Word Blog Award under the category of Best International Feminist Blog. (Thank you, Matt Bastard for the nomination.)

Disability blogs and the blogs of many of our great allies are well-represented throughout the categories. Competing with me in the same category, for example, are Bint's My Private Casbah, Daisy's Dead Air, As The Tumor Turns (Lymphopo/Grannie has kicked cancer's ass so seriously she's decided she doesn't need to blog about it anymore for now, btw), and Ms. Crip Chick, as well as many other people I love and blogs I love to read. Elizabeth's Screw Bronze! is nominated under Individual Blogs.

The first round of voting is now -- February 15-16. The final round of voting will be February 22-23 with winners announced on the 24th. To vote, go to the main nominations page and follow each link on the right sidebar to vote in each category.

And while you're over there, check out A Creative Revolution's fundraising initiative for WISE:

WISE (Wellbeing through Inclusion Socially and Economically) is one of many organizations who have been mightily screwed by Canada's Eww Government's cruel and unnecessary cuts to the SWC, because of the need to toss some raw meat to their socially conservative, classist, anti-woman base. WISE needs your generous help more than ever to continue providing leadership, training, awareness, and advocacy for low income women across Canada.

We know that you would help women in need out of the goodness of your heart - there is no doubt about that. However, to sweeten the deal, we have added a super-fantastic raffle which will entice you to give more!

Many disabled women are in the low income category of women WISE seeks to assist, of course. If the joy of voting for some of your favorite bloggers doesn't encourage you to make a small donation, maybe ACR's prize to the winner of a raffle for donators will get you interested: "It's a pair of fabulous, bodacious, hand-knit Teutonic Titpillows!" (Visual description of the image at the fundraising post link: Just what you might imagine. Two hand-knit plump-but-perky white-girl boobs.)

Cop dumps quadriplegic man out of his wheechair

The story:

Police Suspended for Wheelchair Dumping

TAMPA, Fla. (AP) — Four Hillsborough County sheriff's deputies have been suspended after purposely tipping a quadriplegic man out of his wheelchair at a jail, authorities said Tuesday.

Orient Road Jail surveillance footage from Jan. 29 shows veteran deputy Charlette Marshall-Jones, 44, dumping Brian Sterner out of his wheelchair and searching him on the floor after he was brought in on a warrant after a traffic violation.

Sterner said when he was taken into a booking room and told to stand up, Jones grew agitated when he told her that he could not.

"She was irked that I wasn't complying to what she was telling me to do," he told The Tampa Tribune.

"It didn't register with her that she was asking me to do something I can't do."

Jones has been suspended without pay, and Sgt. Gary Hinson, 51, Cpl. Steven Dickey, 45 and Cpl. Decondra Williams, 36 have also been placed on administrative leave pending an investigation, sheriff's spokeswoman Debbie Carter said.

"The actions are indefensible at every level," Chief Deputy Jose Docobo said. "Based on what I saw, anything short of dismissal would be inappropriate."

He said the officers' actions were an aberration.

Yes, just another story documenting the callous abuse of power by law enforcement. Unbelieveable, but... not, right?

But it's also an example of how inept the media is at covering disability. The Associated Press headline: "Police suspended for wheelchair dumping"

"Wheelchair dumping" is ambiguous, obnoxiously imprecise, and goes for the shock value at the expense of even mentioning the victim involved. "Man dumped from wheelchair by cop" would have preserved the news shock value while also speaking the truth.

In any case, "wheelchair dump" has another meaning. "Dump" (also known as "rake" or "squeeze") refers to the seat angle on a wheelchair. To a seasoned wheelchair user, a story titled "wheelchair dumping" suggests discussion of the intricacies of butt comfort, balance, and leverage to push oneself. To a wheelchair user, the headline is not only insulting, it makes no sense.

The video of the abuse shows the police officer walking behind the man in the wheelchair and abruptly tipping the chair forward so the seat is at much more than a 45-degree angle from normal. Sterner attempts, briefly, to hold onto the arms before falling forward head first and landing hard on the floor. He is then rolled around on the floor and searched before being placed roughly back in his chair. The TV news report showing this video includes footage of Sterner outside, wearing sunglasses and using his arms and hands with some difficulty. He explains to the news camera that he has no feeling from the chest down and did not know at first how badly he was injured from the fall, but thought he might have broken some ribs.

RIP BrainHell

BrainHell died yesterday. He was a husband and father of two on an inevitable journey with ALS.

Image description: A color photo taken by the subject, his arms outstretched to hold the camera for a head-and-shoulders shot. He's a man in his 40s, dark hair, intelligent brown eyes with very arched brows. BrainHell wears a dozen electrode sensors on his forehead, ears and in his hair, with a halo of multi-colored wires encircling his head.

He was honest. Insufferably honest, sometimes. He used his blog to record random personal thoughts and childhood memories, share frustrations about his failing body, provide instructions for his nursing care as his ability to communicate became more difficult, leave love notes to his family, and express anger too.

I was an inconsistent but devoted reader of his blog, and to my knowledge, he never specifically wrote about "disability rights" or "crip culture," but he lived the experience and shared it organically, apolitically. Just two weeks ago, a typical BrainHell entry on the tricky dynamics of intimate personal assistance:

he started out being my best night caregiver. he calls me 'the best in the west' sans irony, and agrees when i say i respect him and would never play games. but once i am helpless in bed, his anger mounts as he accuses me of ringing the bell to toy with him. it frightens me. l wonder if he knows that when he does this, he is acting like the mean rich people told me about. i want to work with him, not ask the agency for someone else.

BrainHell wrote often about inadequate care but, as with everything, he never really bothered to return and provide closure of any kind to the problems or speculations he shared with readers. He was writing about uncertainty anyway, and it would have been an indulgence to readers if he had. I don't believe that was his style.

His Amputation Derby entry of about three years ago seems especially poignant now:

Here's a fun game: what body part would you be willing to part with in exchange for being thereby cured of ALS?

You might think I'd give up an arm and a leg quite happily so that I would not DIE! But people are always trying to get the best deal for themselves, always scheming and calculating...

See, I have this gut feeling, perhaps totally foolish, that I will live long enough to witness a treatment that will stop the progression of the disease.

So, since a stop-cure is coming anyway, why lose a foot over it? OK, actually, maybe losing a foot today would be worth it because, who knows, in five or 10 years when the cure comes around, I may no longer be able to stand up. So yeah, in that case, it might be worth it.

I would never have described him as an optimistic guy. He wasn't hopeful -- just living fully within the grim uncertainties of ALS.

For some time now, his blogging has been brief, often riddled with uncorrected typos, and less frequent. His last words for us, offered posthumously:

ok i'm dead. so what? i partook of much wonder and beauty. you should be so lucky!

We were lucky to have known a bit of him. RIP BrainHell.

Read Bint's memorial.