Winter at the Gimp Compound

The holidays and the new year went well for me, though my computer needed some repairs that kept me from writing here for about a month. Hap...

Katie Jones and Deus ex machina

The story of Katie Jones has been circulating slowly on disability listservs and blogs since the December 9 article in the Chicago Tribune ....

Thursday at the Gimp Compound

Today was another Parts Replacement Day and all seems to have gone especially well. When I made this appointment to swap my feeding tube for...

My fat (but actually very normal-sized) legs

Almost a year ago, I mentioned some good news about weight gain . Recall that I was starvation-level underweight just two years ago for a va...

Just when you think you're safe

This past August really sucked. September did too. I got a routine feeding tube replacement at the end of July and then had weeks of agony e...

Medical professionals who are excellent, asses and part of a failing system

My posse and I trekked into the Twin Cities this morning (despite threats of dangerous weather that have come true all around Minnesota ove...

More on Emilio

I posted about baby Emilio Gonzales on Wednesday, but here's a petition to sign for him . It does appear that public attention and invol...

Little Emilio and the Texas Futile Care Law

The AP story here : A dying toddler facing removal of his life support system received a reprieve Tuesday when hospital officials agreed to ...

Anniversary -- Escaping institutionalization

This Tuesday, March 6, was the one-year anniversary of my returning home from my four-month hospital stay. What makes the date so important...

Like a lion -- A rant

Last weekend we got 15 inches of snow here at the Gimp Compound. Since I'd managed a successful Parts Replacement Event with my feeding ...

Random Parts Replacement Fun

Ventilator traded in for one which does not randomly turn itself off: Check. New ventilator's obscure nonprescription default settings ...

Once more for 2006

Inclusion Daily Express lists the top disability rights news stories in the U.S. for 2006. Less obvious stories about disability rights tha...

Wednesday gimp blogging

Before Thanksgiving, I had another Parts Replacement Week -- my three-month feeding tube swap and a trach switch. Both went extremely smooth...

My déjà vu

Wednesday, November 8, 1989 was a beautiful day in Tempe, AZ, with the sky a cloudless blue. I was up early, waiting at the front desk of Pa...